These are the world’s most high ranking experts on ADHD

Who are the most knowledgeable people about ADHD in the world? According to the website expertscape.com, these are professors Stephen Faraone (SUNY upstate University), Samuel Cortese (University of Southampton) and Jan Buitelaar (Radboud University Nijmegen).

What’s more, several scientists who are involved in our research consortia that investigate ADHD (i.e. Aggressotype, CoCA, IMpACT, Eat2beNICE) are top-ranked in this list of more than 30.000 possible experts in the field. These include Stephen Faraone, Jan Buitelaar, Philip Asherson, Barbara Franke, Joseph Antoni Ramos-Quiroga, Henrik Larsson, Catharina Hartman and Pieter Hoekstra. What this means is that the ADHD research that we do, and that is often reported on in this blog, is lead by the world’s top ADHD experts.

adhdexperts_pic
‘Our’ top-ranked ADHD experts. From left-to-right: Stephen Faraone, Jan Buitelaar, Philip Asheron, Barbara Franke, Joseph Antoni Ramos-Quiroga, Henrik Larsson, Catharina Hartman, Pieter Hoekstra.

How is an expert defined?

The website expertscape was started by John Sotos when he was looking for an expert on Parkinson’s disease to treat his uncle. This turned out to be more difficult than he thought. As John Sotos was a doctor himself, he luckily had a large network of doctors that he could contact about this. But this made him realise that people who don’t have such a network, would not be able to find out who the most knowledgeable persons are on a particular topic. He therefore created this website expertscape.com

The way the website works is quite simple: it searches for academic, peer-reviewed publications by a certain person on a certain topic. The more someone has published on a topic, the higher this person is ranked. Thus,  “[a]n expert is not just someone who knows a lot about a particular topic. We additionally require that the expert write about the topic, and be involved at the leading edge of investigation of the topic.”

This means that the site is actually not a very good tool to find a good doctor. As the website acknowledges “a great doctor has many important qualities beyond expert knowledge of your very specific medical condition.” However, it does mean that the website is pretty good at providing a simple overview of who has a lot of scientific knowledge about a specific topic.

So are they really experts?

In the past years I have met with most people in the top of this list, and I dare say that they are very knowledgeable indeed. Each of them has been working in the ADHD field for a considerable amount of time and has added important new insights into ADHD through research and publications. What I find most striking from this list however, is that most of these experts work together in consortia and international networks. And that is how the field really moves forward: by combining the knowledge of all these experts.

Several of these experts have also written for this blog:

 

Source: http://expertscape.com/ex/attention+deficit+disorder+with+hyperactivity

 

This blog was written by Jeanette Mostert. Jeanette studied brain connectivity in adult ADHD during her PhD. She is now dissemination manager of the international consortia CoCA and Eat2beNICE. 

 

Risk-taking and ADHD?

Brisk/Risks: Go on – what’s the worst that can happen? (15-minute film with BSL) from kaisyngtan on Vimeo. Freeze frame shows participants Jaye Braithwaite with BSL interpreter Jacqui Beckford.

Attention deficit hyperactivity disorder (ADHD) is popularly associated with being easily distracted. Its other features, such as out of the box thinking, hyperfocus or risk-taking seem to be less discussed beyond specialist contexts. Brisk/Risks was a fun, accessible and engaging open mic event exploring risk-taking within and beyond the framework of ADHD and mind wandering. It featured King’s College London’s Professor of Psychiatry Philip Asherson, ADDISS Chief Executive Founder and President of ADHD Europe Andrea Bilbow OBE, and Wellcome Trust-funded medical humanities scholar Dr Sophie Jones, amongst others, and was curated by artist Dr Kai Syng Tan.  Brisk/Risks took place on 4 December 2018 at Bush House, London, UK. The event was part of the ‘King’s Artists – New Thinking, New Making’ exhibition, featuring Tan’s exhibition of a large tapestry from #MagicCarpet, which was her project mentored by Asherson (since 2017). The film version of the event (15 minutes) is BSL-interpreted and edited by Studio Maba. The film premiered at Birkbeck Arts Week 2019, which included an exploration by Tan of the contested term of ‘neurodiversity’. In this blog post, Kai shares 2 transcripts from the evening, of presentations by Kai and one of the participants, Jaye Braithwaite, a ‘Creative, Tourettist and Teaching Assistant’. Read Kai’s own reflections on the open-mic and film here.

IMG_7300
Andrea Bilbow OBE with BSL interpreter Jacqui Beckford. Photograph by Alessandra Cianetti.

 

TRANSCRIPT: Opening provocation by Tan

Do you take risks? Why? Why not? What’s the riskiest thing you’ve ever done? Do you regret it?

Are you risk-adverse? What could be the opposite of risk-seeking? Pragmatism? Common sense? Does survival come into play? Does courage or naivety come into play? Does play and pleasure come into play?

Flip side: Failure? Up-side: Resilience?

Risks and opportunities. Truths or dare. Live fast die young. Crime and Misdemeanours. Health and safety? Sense and sensibility? Cock and bull. A well-known university states: ‘risk-taking produces innovation. That’s why our classrooms are safe spaces for our students to take risks’. Yeah right. We call students ‘clients’ and promise them nothing less than a 2:1. How’s that for innovation?

Seeking novelty, cheap thrills or doing extreme sport because your ADHD brain is under-aroused. Stealing flapjacks from a shop everyday for four years because it gives you a kick — and you didn’t even like flapjacks. Sorry UCL. Having your film banned, tapes confiscated by the government because you’re not allowed to talk politics there. Upheavals: walking out of your family, country, relationships permanent jobs — as the norm, to work on this project for example.

If you have ADHD, your child has 25% chance of also having ADHD – congratulations.

Research commissioned by Eclipse, a black-led theatre company in Sheffield, reveals how when black artists are told that their work is ‘high risk’, it’s ‘simply an excuse for racism’.

Is humanity under threat from the rise of AI? Is democracy dead? — Do we care? Forests are burning. The earth is dying, ice is melting — and we’re put on our bikinis, sunbathing, basking in the heatwave. Heroes like Aung Sun Suu Kyi have fallen. Left standing, on centre-stage, at the far right, are jesters, cowards. Movement, a human right under Article 13 of the Universal Declaration of Human Rights, is endangered. Walls physical and invisible are erected, borders hardened, our minds closed, as we fear the other, retreat to our tribes hide behind screens. We stop taking risks, as artists, scientists, researchers, makers, citizens, and only go for tried and tested options. Work with or fund something/someone unfamiliar? Don’t be silly. We feel impotent, so we punch down, not up. We’re so busy fighting amongst ourselves, that we’ve become what Stephen Fry calls ‘illiberal liberals’ and ‘irrelevant and outdated bystanders’. The masses have shown that they can’t be trusted. So is now the time for a new profound theory, as Slavoj Žižek argues?

What if human beings didn’t go to the moon?  What if, 2 million years ago, our ancestors didn’t run long distances — 6 hours, 30 kilometres, after the antelope –to hunt them down? Would the Homo erectus have died of starvation? What if migrants who risk everything to give their kids better lives give up and ‘go home’, as people around them keep telling them for centuries? What if entrepreneurs with ADHD like Richard Branson didn’t risk everything and start their businesses?

What if no one comes to my first ever – and possibly last — open mic?  What if people come but no one comes up to speak?  Will this spell the end of my career as an artist-curator?

It’s OK. I have a plan B. It’s our secret — that’s why I’m whispering. I’m coming up with my own brands of perfume. It’s targeted at people who think ADHD doesn’t exist. So when they use it, it makes them ‘a little bit more ADHD’: more restless, more reckless.

One is called Impulse. The other? Risk.

Would you buy it?

2018-12-05 13.11.11-2
Some of the comments for the evening.

TRANSCRIPT: Presentation by Jaye Braithwaite

I shouldn’t be hiding

There’s no denying

That I’ve got Tourettes

I tic I shout I move all about

 

Let’s do adhd next

Absolutely

Disorganised

Happily

Daydreaming

 

I can’t keep still

I can’t concentrate

Easily distracted

I can’t wait

My mind races

The competition is real

I get that urge to tic …The thought, the feel

 

Sometimes it’s good

Sometimes it’s bad

Other times I’m happy

Other times I’m sad

 

The creativity I get

The way it hits me

I feel so free

Writing at 3am

Paper and pen

 

Ticcing at dawn

Sleeping at noon

 

It all just happened

Won’t be ending too soon

 

I’m unique

So unique

 

I like to think

Think think think

 

I’m unique

I’m special

Or am I just weird

 

I used to be angry

But I realised I was Just scared

Scared of people

And how they would react

 

It would cause me to act

Act normal or whatever that is

These weird things about me I hid

 

Hid them well

Until my head began to swell

I couldn’t take it anymore

 

It was time to pour

Show myself

Be proud

I’ve got adhd and Tourettes

 

And I’m allowed

Allowed to be myself

No filter

Just me

Now I can be

I can be finally free

 

 

LINKS

*See film trailer version of the film Brisk/Risks here.

*See gallery and feedback of Brisk/Risks here.

*See images and feedback of premiere of the film at Birkbeck, University of London, on 21 May 2019 here. The film premiere was part of Too Much/Not Enough: Neurodiversity and Cultural Production, of the Birkbeck Arts Festival, The evening featured 2 new provocations by Kai, alongside medical humanities scholar Dr Sophie A Jones and curator Alessandra Cianetti. Listen to podcast here and read the transcript of Kai’s response to the open mic/film, on risk-taking and leadership, here, and a provocation on the contested term ‘neurodiversity’ here.

* Find out more about #MagicCarpet here

The Conversation article by Tan and Asherson: On the salience of high quality art in mental health

*BMJ medical humanities article: On thought-leadership of arts & philosophy inculture change (review of Mohammed Rashed’s book on mad activism)

*Disability Arts Online article: On neurodiversity & women

*PsychART article: On #ADHD women making #ADHD art

*A-N Artists’ Information article: On mind wandering: Best Friend/Worst enemy

*KCL Culture story: On being the first artist-in-residence, Social, Genetic & Developmental Psychiatry Centre

ABOUT #MAGICCARPET

The open mic and film are part of ‘We Sat On A Mat and Had a Chat and Made Maps! #MagicCarpet (from 2017), which is an art-science exploration which gathers diverse and divergent bodies (and bodies of knowledge) to explore difference and (neuro)diversity, with ADHD and how it relates to mind wandering as a starting point. #MagicCarpet was a 2017 Unlimited commission funded by Arts Council England, with additional support by King’s College London. Thus far, #MagicCarpet has reached more than 9000 people, including through Arts in Mind and Unlimited Festivals. Venues include Science Museum, Southbank Centre, South London Gallery, Art Workers’ Guild and the Peter Scott Gallery (Lancaster). Publications include an article that was read 2000 times within 2 days of publication in The Conversation (10.6 million readers) and a top 2018 editorial on neurodiversity and women in Disability Arts Online. 100% of the feedback for an event stated that the work has challenged their understanding of how the arts and science can collide and create new insights. AHRC reviewers have described a proposal of next phase of the work as ‘exciting and innovative’; ‘already leading the way’ and ‘with an impressive track record’. #MagicCarpet was awarded a prize for ‘Cultural Change’ by the National Coordinating Centre for Public Engagement (2018). Dr Kai Syng Tan FRSA SFHEA was the project’s lead and the first artist-in-residence at the Social, Genetic & Developmental Psychiatry Centre. An artist, consultant, curator and academic, Tan is best known for gathering diverse and divergent bodies and bodies of knowledge to engineer spaces of ‘productive antagonisms’ (Latham & Tan 2016) across disciplinary, geopolitical and cultural boundaries, in what she calls an interdisciplinary ‘ill-disciplined’ approach (Tan & Asherson 2018). Marked by an ‘eclectic style and cheeky attitude’ (Sydney Morning Herald 2006), ‘radical interdisciplinarity’ (Alan Latham 2016) and ‘positive atmosphere’ (Guardian 2014), she is recognised as ‘absolutely central’ for the emerging ‘Running Studies’, and was Visual & Communications Director for the £4m Opening and Closing Ceremonies of 8th ASEAN Para Games (2015).

2018Dec4_MagicCarpet_OpenMic_KingsArtists_6_KaiSyngTan
Audiences, including Professor Philip Asherson in the front row, enjoying the open mic. 4 December 2018, Bush House, London, UK.

 

10 Years of progress in Adult ADHD

This year will celebrate 10 years of the UK Adult ADHD Network. During that time we have seen a rapid advance in our understanding of ADHD across the lifespan, the availability of diagnostic services and access to effective treatments. Advances seen in the UK are also seen in many other countries across the EU and worldwide.  The meeting will highlight key advances in our understanding of course and outcome; genetic, environmental, and neuroscience of ADHD; and topics relevant to the diagnosis and treatment of ADHD from adolescence to early and late adulthood.

Aims of the Conference

This meeting aims to raise the level of knowledge and expertise among health care professionals about adults with ADHD and provide a better understanding of the persistence of the disorder, the development of comorbid mental health problems and the delivery of effective treatments. The program will be delivered by prominent opinion leaders, clinical experts and internationally recognised investigators.

Speakers

The selection of speakers is important so that the audience can hear directly from the most experienced professionals working in this rapidly developing area of clinical psychiatry.

Speakers will include : David Nutt, Eric tayor, Anita Thapar, Alexandra Philipsen, Ian Wong, Samuele Cortese,  Philip Shaw, Jessica Agnew-Blais and Pravina Rudra.

Welcome Reception – Art with Heart

There will be a welcome reception hosted by UKAAN on the evening of Thursday 12th September. This will be preceded by a Performance of ‘Declaration’ by Art with Heart. Developed in consultation with medical professionals, ADHD and mental health support groups, ‘Declaration’ examines when we want, need or are forced to declare our differences, and the faces we wear to fit in. Numbers are limited, so early booking is advised! 

Click here to register and for further details.